tag:blogger.com,1999:blog-55824602011-04-21T17:56:28.611-07:00Log of my health issuesKarennoreply@blogger.comBlogger4201100tag:blogger.com,1999:blog-5582460.post-1135877090168148892005-12-29T09:43:00.000-07:002005-12-29T10:24:50.253-07:00

I cannot believe it has been this long since I posted here. What a roller coaster ride the last three months have been. It started when I had surgery on 10/20 to remove my ovaries due to endromitriosis and scar tissue. There was so much scarring she had to open me up again. My ovaries were attached to my walls and it started to involve my bowel, good thing I had it done. I knew something was

Karennoreply@blogger.com7tag:blogger.com,1999:blog-5582460.post-1128735937290419402005-10-07T18:39:00.000-07:002005-10-07T18:45:37.296-07:00

I had post all written, silly me didn't copy it first in case Blogger got hungry. Grrr. Here's the poop: Surgery on 10/20 to remove my ovaries. Pre-op and another ultrasound next Friday. Slight/slim chance the cysts are shrinking, if so, no surgery... but we're not banking on it. We're hoping the surgery can be done lapro, but there may be complications with additional endromitriosis

Karennoreply@blogger.com4tag:blogger.com,1999:blog-5582460.post-1128597760701404422005-10-06T04:20:00.000-07:002005-10-06T04:22:40.706-07:00

I was home sick for 3 days... I thought I was on the mend. Feeling like poo, and the antibiotic was helping the bronchitis and sinus infection but was causing other problems. I was so tired I could barely move. My cough is so much better, no longer "barky" and my sinuses are feeling clearer and the headache is pretty much gone. I'm back to work today though! YAY. Oh wait... why again am I

Karennoreply@blogger.com7tag:blogger.com,1999:blog-5582460.post-1128264939448838072005-10-02T07:45:00.000-07:002005-10-02T07:55:39.513-07:00

My bronchitis is much better, as well as my sinus infection. Rest, relaxation, and med have helped a lot. RA is giving me fits today, but I think I need to move around some. UC is OK so far, but I'm sure trouble is brewing since I was really naughty and ate a salad last night.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1128103013813715972005-09-30T10:48:00.000-07:002005-09-30T10:56:53.823-07:00

I have returned from the doctor. As I suspected, I was starting bronchitus so he gave me an inhaler for that. I also have a sinus infection so he gave me nasal spray and an antibiotic for that. He said to use the humidifier at night, and if the cough gets worse then to take some cough medicine (a specific kind that I can take, over the counter) and if even worse then to call. If my fever gets

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1128029980241523992005-09-29T14:37:00.000-07:002005-09-29T14:39:40.246-07:00

No wonder I was feeling flu-ish, I'm getting sick. It started with a cough this morning, and hit immediatly hurt, then it is feeling like a sinus infection, and I feel like poo and feeling worse by the minute. Shit. When this stuff hits me, it hits me fast because of my lowered immune system (what the Remicade does) and getting infections easy. I see my internist in the morning, good thing....

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1127942572944552012005-09-28T14:19:00.000-07:002005-09-28T14:22:52.950-07:00

I had my Remicade treatment yesterday and am feeling more flu-ish than I have for a while. I imagine it is from being tired. I don't have a fever so that is a good sign. Things are stable otherwise, leaving everything the same. IF I have to have surgery, he said I'd be fine not too miss any treatments since the surgery won't involve any joints. Next up: appt on Friday with my internist for a

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1127592555767534692005-09-24T13:06:00.000-07:002005-09-24T13:09:15.776-07:00

I've had a little bit of progress. My gyno's office called Friday afternoon about the cysts, and I've scheduled and appointment to see her on Oct 7, to discuss what needs to be done. Finally. The past week has been bad pain-wise. I stayed home Monday from work, and felt some better but the rest of the week was worse than normal. Which is pretty much the way it goes, I realized it was the

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1126998764420512622005-09-17T16:09:00.000-07:002005-09-17T16:12:44.426-07:00

I've been so busy, and so much has been going on that I've neglected this health log again. I'm doing somewhat better, but my tummy isn't liking me, and I imagine it is stress related. I hope it will calm down and it isn't a flare.I heard back from Dr W's office about all of my blood test results. All are good, so now Dr W. just needs to figure out what to do with they cysts and we'll go from

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1126394354602945562005-09-10T15:59:00.000-07:002005-09-10T16:19:14.640-07:00

This has been a hot week, and it finally caught up with me - as well as being exhausted. Yesterday was tough, my finger joints were tight and I could feel the inflammation starting. By late afternoon the joints were purple and one finger kept locking up. I rested a lot, and slept well last night. I took an extra boost of prednisone today and within 3 hours I felt a difference. Things are

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1125592783115120482005-09-01T09:30:00.000-07:002005-09-01T09:39:43.123-07:00

The ovarian cancer test came back negative, thank goodness! I don't know what I would have done if it was positive. The other tests came back too but I have no clue how to read them. I will call my gyno and make sure the results have been received.My protime came back lower again, despite the increase in my coumadin. This is driving me nuts. I've got a call into my internist to see what he

Karennoreply@blogger.com3tag:blogger.com,1999:blog-5582460.post-1125100095064814022005-08-26T16:41:00.000-07:002005-08-26T16:48:15.070-07:00

After 2 weeks of waiting, 3 phone calls to the hospital to get the damn ultrasound results to my Gyno. The nurse just called and said that since the cysts are still on the ovary, they need to do a CA125 test for ovarian cancer. Isn't life great? I'm really trying not to freak out because my head is telling me it is just normal protocal to rule it out. I wish my heart would understand it. I'm

Karennoreply@blogger.com4tag:blogger.com,1999:blog-5582460.post-1124633307876642732005-08-21T07:04:00.000-07:002005-08-21T07:08:27.883-07:00

to report. Still waiting on calls from docs about the cysts and about my coumadin dosage. Both will get phone calls tomorrow morning from a not-too-happy patient. Great docs but I think their staff doesn't do too good of a job carrying out orders. I think patients need to be proactive in their care anyway these days. I was bad on Friday and had some fresh tomatoes and cucumbers for lunch. I

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1124197590376558042005-08-16T06:02:00.000-07:002005-08-16T06:24:39.700-07:00

I was feeling OK, in some pain (enough for a pain pill) so I took one. Then a few minutes later, some rotten feelings came over me. Like I could scream and just want to run away. I started to shake too. Nothing happened to provoke it - just happenend. So I took a Xanax and its calming me down. I HATE feeling like this, I really do. I wish I knew what caused it though.*UPDATE* ummm.... hello...

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1123897694522807612005-08-12T18:39:00.000-07:002005-08-12T18:48:14.530-07:00

I had my follow up ultrasound today on my left ovary. The cysts are still there, although one is slightly smaller (better than bigger!) but its apparent that they're not related to ovulation. I should hear from my doctor sometime next week (hopefully!). She's supposed to get the results by Wednesday. I know that some cysts are shrunken by using birth control pills, but I can't take them due to

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1123608642619922492005-08-09T10:23:00.000-07:002005-08-09T10:30:42.626-07:00

My left shoulder has flared. I took it easy yesterday but spent most of it at the computer putting things back together. Not a good idea... but not much choice. I slept for nearly 10 hrs last night, with the ice pack on (fell asleep), and actually didn't move all night. Shoulder is still hurting but flaring down. Pain pills are my friends today!I finally heard back from the doc's office

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1123085281864970102005-08-03T09:02:00.000-07:002005-08-03T09:08:01.870-07:00

After a few days of increased coumadin, my protime is finally risen - I don't think it is where it should be though but I'll have to wait to hear from my internist. 15.4 with INR of 1.3. Of course he's out of the office until Friday so I'll call first thing then to find out what he wants me to do. The pain in my legs has finally eased and its very mild so that's a good sign.My Remicade

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1122815749128836452005-07-31T06:10:00.000-07:002005-07-31T06:15:49.140-07:00

Its been a fun couple of days. Well, not really. My docs were out of the office on Friday so I ended up going to the ER that afternoon when the pain had spread to both legs and my ankles were a little swollen, despite the lasix. The ER doc ordered blood tests and my protime was even lower than it was on Wednesday despite the increase in coumadin. She also did a test to see if there was a

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1122641093077956842005-07-29T05:35:00.000-07:002005-07-29T05:44:53.086-07:00

I get my protime tests done each month when I get my Remicade treatment by my RA doc. The tests are to be sent to Dr. B my internist. I hadn't heard anything for about 3 months so I called on Tuesday to find out if everyting was OK. They haven't been getting my test results (so I'll raise some hell with the lab!). I had the results faxed to Dr. B and the tests showed my blood is a lot thicker

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1121702794155171032005-07-18T09:00:00.000-07:002005-07-18T09:06:34.163-07:00

I'm having some slight flares. Last night all of the sudden my right shoulder started bothering me, and before I knew it my wrist was too. The tendons were sticking out as they have in the past from the swelling. My elbow was next. I went to bed quickly and had ice packs on all spots and fell asleep, and woke up 4 hrs later and the ice packs had melted but things felt better so I didn't put

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1121337105696786682005-07-14T03:27:00.000-07:002005-07-14T03:31:45.706-07:00

Its so hot here, over 100 and it is killing my joints. Especially my hips, knees and feet. My hips are hurting so bad I've got pains in my ass. Pain pills help but not totally (but what else is new). I really think the heat is so much harder on RA than the cold is. I went to Colorado over the weekend, and did really well. I didn't get over tired but was able to do all I wanted to. The

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1120690878871981022005-07-06T15:57:00.000-07:002005-07-06T16:01:18.870-07:00

I had my monthly Remicade treatment yesterday and things went OK. Dr B. said to leave everything the same. I told him about all the test that Dr W. ordered for me, and he had his nurse look up the bone scan results. I am indeed slightly below normal. He needs to keep me on the low dose of prednisone which I HATE but I also want a life! So, he said to double up on my calcium as long as I stay

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1120496525170384862005-07-04T09:59:00.000-07:002005-07-04T10:02:05.176-07:00

Not feeling so fragile now, and having the mini melt down/pity pot day really helped. I'm still nervous but, I need to find out exactly what is wrong and then will face what needs to be done. I've been in quite a bit of pain from the heat (I think!) but its also time for my Remicade treatment which is tomorrow. YAY. UC has been fine, and blood sugar has been pretty good too. I've been getting

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1120265968617445182005-07-01T17:44:00.000-07:002005-07-01T17:59:28.626-07:00

I went to the hospital this morning for my 4 tests. I was smooshed, smashed, squeezed, rolled on, slimed, scanned, and measured. I had the mammo first, and that is always fun, feeling like you're plopping 5 lbs of meat on a cold metal counter. Then I went for my ultrasounds. They did the ovary first while my bladder was VERY full then I had to empty it before they did the vag (poky) one. Now

Karennoreply@blogger.com6tag:blogger.com,1999:blog-5582460.post-1120129724361067612005-06-30T03:55:00.000-07:002005-06-30T04:08:44.366-07:00

We're having a bit of a break from the major heat and my RA is behaving again. I'm just having the normal aches and pains and haven't had to take a pain pill in 2 days - despite having thunderstorms. YAY! UC was a little off yesterday but not too bad. Blood sugar was fine too. No complaints, really.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1120004362078888182005-06-28T17:10:00.000-07:002005-06-28T17:19:22.086-07:00

I had my yearly "Grand Opening" exam today with my gyno. As far as the hysterectomy went things are good. She said, "You've got good support all around." I guess those PC exercises are keeping things good in there. LOL! But then my right ovary was a little enlarged and very tender so she thinks that I could have a cyst developing or there is blood in it - which can happen after a partial

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1119445046497426162005-06-22T05:55:00.000-07:002005-06-22T05:57:26.503-07:00

Hotter and more humid yesterday. Thunderstorms, etc. Even though I'm not spending much time outside, its still bothering me. Stairs kill me from toes all the way up my butt. GAH. Pain pills are helping but don't help much on the stairs. I just feel like crap :-( Spirits are pretty good though so I'm not a total slug. UC and BS have been fine. :-D

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1119350037473270852005-06-21T03:32:00.000-07:002005-06-21T03:33:57.480-07:00

Is really playing a number on me. I had to take two pain pills yesterday at work. I really hate doing that but it was either that or come home and crawl into my bed and that really wasn't an option because I had so much to do. So far, I've only had to take one and am hoping that's all I'll need today.UC has been OK since Sunday's episodes. Blood sugar has been stable the past couple of days

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1119214337780458572005-06-19T13:46:00.000-07:002005-06-19T13:52:17.796-07:00

I'm really moving in slow motion today. I'm so drained of energy, and haven't been this tired for a while. I was in quite a bit of pain when I got up, so I took a pain pill and that didn't do much so I took another about 2 hrs later and that helped a lot. I've been resting and taking things easy since. I hope I'm not this tired in the morning, otherwise I don't know if I can make it through

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1119127958386169552005-06-18T13:49:00.000-07:002005-06-18T13:52:38.393-07:00

I've been lost for a while, both on vacation and not updating. I had a great time on vacation, over did things slightly but wouldn't have had it any other way. The pain pills helped though, and just being away having FUN did me a world of good emotionally. No flares at all, just pain all over. I actually did better when we were getting in/out of the truck than I was when I would drive for long

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1118149827359815942005-06-07T06:07:00.000-07:002005-06-07T06:10:27.366-07:00

Had my Remicade treatment yesterday. All looks good, my liver and blood counts are good. In fact my blood count went up a little bit which was a relief since we're worried about the Imuran suppressing my bone marrow like the methotrexate did. So far, so good 2 months into it. I also lost 8 lbs in the last month. I was really excited about that. So, I'll keep doing what I'm doing. My left

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1117017859845822982005-05-25T03:42:00.000-07:002005-05-25T03:44:19.853-07:00

I have some aches and pains all over today. I had a pretty good day yesterday so not sure why its come back. I didn't sleep well and tossed and turned a lot. Maybe that's why. Hard to say. Hopefully it will get better as the day goes on.UC has been fine, and so has blood sugar.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1116853023276669582005-05-23T05:55:00.000-07:002005-05-23T05:57:03.303-07:00

Feeling a lot better. 2 days of rest is just what I needed. Hips are still hurting some but not nearly as bad. Didn't sleep well last night but am in good spirits. UC isn't liking me too much today, but is starting to pass. Blood sugar has been fine.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1116711452978562232005-05-21T14:34:00.000-07:002005-05-21T14:37:32.983-07:00

Feeling ever so shitty today. In a lot of pain all over, but mostly in my hips. I do believe its from all the crawling around I did yesterday in assembling my DVD cabinet and from the spring cleaning. I will live though, and am in good spirits. Pain pills and muscle relaxants are helping both LOL.UC has been fine.Blood sugar was lost yesterday, went down to 45. Took about 4 hours before I

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1116508162945561542005-05-19T06:07:00.000-07:002005-05-19T06:09:22.953-07:00

I was really in a lot of pain last night, I think from the storms moving in and out, and the pressure changing. I had to take 2 pain pills when I got home and that just took the edge off. I was able to sleep though. I'm feeling better than I was last night, but still am hurting. Part of life though.UC is fine, and so is my blood sugar.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1116251859860390092005-05-16T06:55:00.000-07:002005-05-16T06:57:39.866-07:00

Its really all my fault that I was hurting so bad Friday, Saturday and yesterday. I over did things with the spring cleaning but at least the major parts are done, and I just have smaller tasks next. It did feel really good to get it all done though.UC has been fine, and blood sugar felt like it dropped low again but was only in the low 80's. So it may have been on its way down.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1115916657230112042005-05-12T09:47:00.000-07:002005-05-12T09:50:57.236-07:00

That's a nice word to describe how I'm feeling. Achy and painful all over, feel like I want to just go home and crawl in bed - which I may do soon. I'm trying to stick it out at work for another hour or so. I think feeling this rotten is from cleaning out a lot of snow out of my trunk yesterday, followed by some shop vac work of sucking up water from the carpet. Plus the weather of course.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1115808470655038492005-05-11T03:45:00.000-07:002005-05-11T03:47:50.660-07:00

I'm pretty achy and sore this morning. Could be from the temp dropping and the huge storm that is here. Of course I always feel a little rough for the first few days after the Remacade too so it could be that too. UC is doing fine too, which is so great. Hooray! Allergies are so bad though. Can't wait for the Zyrtec-D to arrive from the 90 day pharmacy. They Zyrtec is doing OK, but I need

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1115678873890721612005-05-09T15:44:00.000-07:002005-05-09T15:47:53.896-07:00

I had my Remacade treatment today, and everything is good. My red blood cell count dropped 2 points, but it is normal to have some fluxuation so they're not worrying about it now. But if today's counts are down, more then they'll call me and I'll stop the Imuran. They gave me Zyrtec-D this time because of my allergies and congestion. I don't know why they didn't give me the "D" last time!

Karennoreply@blogger.com4tag:blogger.com,1999:blog-5582460.post-1115307048629587142005-05-05T08:28:00.000-07:002005-05-05T08:30:48.636-07:00

I've really been bad about keeping track of things on here. I guess much has been the same and no changes. Had some bad pain days but others have just been normal. I didn't have my Remacade treatment yesterday and am feeling it. I hope they can reschedule me soon because I don't think I can go much longer without having problems.UC has been pretty good, but I'm starting to get weird cramps

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1114360802355447082005-04-24T09:37:00.000-07:002005-04-24T09:40:02.356-07:00

Allergies are really bad right now, so stuffy and itchy. Zyrtec doesn't appear to be doing squat. :-( RA isn't quite as bad as last week, so that's good. UC is still doing some better too. YAY!

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1114112509880932072005-04-21T12:38:00.000-07:002005-04-21T12:41:49.880-07:00

I've really been neglecting this lately. I have just felt like crap - lots of pain from the RA. So much so that I stayed home from work on Monday. Taking 2 pain pills at a time, plus muscle relaxants. It was like a all-over body flair. Slowly I've gotten better, but am still taking the pain pills, but one at a time. There have been a few storms coming in/out and the temp went from 70 on

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1113219882429514512005-04-11T04:42:00.000-07:002005-04-11T04:44:42.430-07:00

Things slowly got better over the weekend. By Saturday afternoon, the swelling of my foot joints was pretty much gone, and my knees felt some better. I didn't take a pain pill yesterday until I went to bed, and haven't had to take on yet today. YAY! Just the usual aches and pains this morning, but not bad enough for the pain pill. UC is still doing good! :-D YAHOOO!!

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1112976103604416262005-04-08T08:55:00.000-07:002005-04-08T09:01:43.603-07:00

Boy, I'm hurting today! Rain, sleep with not a lot of movement and just regular RA stuff. Balls of my feet are hurting bad, can hardly walk, and my knees don't like me at all. I've got my cleaning done, and now will relax and take a nap. UC is still doing good! YAY!

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1112871766166603022005-04-07T03:58:00.000-07:002005-04-07T04:02:46.166-07:00

I had my monthly Remacade treatment yesterday, and things are going pretty well. There is some improvement and the Imuran is probably a factor. I mentioned my UC has improved too, and he said, "Well, that's because it is used to treat it too." Well, why the hell didn't they give it to me awhile a go, is beyond me. Maybe because I was so anemic. Hard to say. Oh well, am on it now and seem to

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1112447435242782402005-04-02T06:07:00.000-07:002005-04-02T06:10:35.243-07:00

I had a pretty good couple of days, but then of course I over did things and now am feeling like poo! Painful all over, can't really find a joint that isn't hurting to some degree. The hot shower helped but not as much as it usually does. I just need to rest, and hope that I haven't brought on a flare. I really didn't have any choice though, between school and work, this is just how it is. 5

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1112270043772172502005-03-31T04:52:00.000-07:002005-03-31T04:54:03.773-07:00

Not hurting too bad these past couple of days, despite the cold and storms. My right knee has really hurt the worst, but just irritating, not bad enough for a pain pill. Am in good spirits and just doing OK. UC has been OK too.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1112031036708117072005-03-28T10:27:00.000-07:002005-03-28T10:30:36.710-07:00

Wasn't feeling too much pain this morning, but then again I woke up around 11pm last night and took a pain pill because the pain was waking me up when I moved. I haven't had to take another one yet, and it is almost 12 hrs later. YAY! UC was a bit strange this morning, and yesterday, cramping but none of what I'd think would come with the cramps.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1111843059682928272005-03-26T06:16:00.000-07:002005-03-26T06:17:39.683-07:00

Moving pretty slow this morning, even after my hot shower. I didn't move around much last night in my sleep and then there are still storms around so that's probably why. I won't be doing much today, other than studying and resting. I do need to do some cooking too, but that won't be too bad. UC is being a pain.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1111759305288654812005-03-25T06:59:00.000-07:002005-03-25T07:01:45.290-07:00

Very tired from the long day yesterday and not a lot of sleep. I'll catch up on the sleep this weekend though, for sure! I've got a lot to do, and am not feeling too achy/sore this morning so I shouldn't need a pain pill. YAY! UC is a bit of a bother this morning, but seems to me calming down.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1111664609125573792005-03-24T04:41:00.000-07:002005-03-24T04:43:29.126-07:00

I've been in a really bad funk the last few days. Not sure what is causing it, but I'm stressing myself out trying to figure it out. OCD is going nuts, and I'm fed up. RA pain hasn't been too awful, just the usual at least usual for storminess. Lots of rain lately. UC has been OK, and so has my blood sugar.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1111327089676739352005-03-20T06:55:00.000-07:002005-03-20T06:58:09.676-07:00

Feeling the rain this morning. The shower helped but I wish I could have stayed in there all day! The hot water felt so good. I've taken a pain pill to take the edge off, and hopefully that will be all I'll have to take. UC has been fine, and so has my blood sugar.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1111240954400113102005-03-19T06:59:00.000-07:002005-03-19T07:02:34.400-07:00

I'm not doing too bad this morning, really tired from a restless night's sleep. Mind wouldn't shut up and I was feeling down. Pain isn't too bad this morning, just the usual aches and pains. The shower helped a lot. UC is OK, and blood sugar is fine too.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1111059505232616932005-03-17T04:37:00.000-07:002005-03-17T04:38:25.233-07:00

That bugger of a headache is gone! I slept really deeply and feel a lot better today. Not much pain from the RA either. YAY! Nothing much to report. Hopefully it will be a good day!

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1111014410105518622005-03-16T16:01:00.000-07:002005-03-16T16:06:50.106-07:00

I had my 3 month follow up with Dr H today. My A1C was 4.8! YAY! It has come up some, and she was pleased about that. She'd like it right around 5, so this is good. Eating the smaller, more frequent meals is doing the trick. She still thinks I'm heading for diabetes, but hopefully before we get to that point, there are meds that can make my body more sensitive to the insulin and would put

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1110889900365299722005-03-15T05:27:00.000-07:002005-03-15T05:31:40.366-07:00

I'm really tired, haven't slept much the past couple of days. The pain has lessened though, and no signs of flares. Whew. BS was a little low this morning, since I only had yogurt for dinner last night, just wasn't very hungry. UC has been a pain this morning but seems to be calming down.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1110800770543287622005-03-14T04:43:00.000-07:002005-03-14T04:46:10.546-07:00

After a day of a lot of rest, ice on my foot, and 4 pain pills there's a big improvement. My foot stopped flaring and I don't hurt quite as bad as I did. YAY! UC is being a little irritating this morning, but seems to be calming down. Blood sugar feels fine and was OK all day yesterday.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1110720256428324532005-03-13T06:22:00.000-07:002005-03-13T06:24:16.430-07:00

Much the same today, foot is a little better but not much - at least it didn't get worse. The ice helped a lot. Going to take things really easy today and get as much rest as I can. Everything else is doing OK, just the RA giving me fits.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1110669894659194362005-03-12T16:22:00.000-07:002005-03-12T16:24:54.660-07:00

My left foot - that was bothering me earlier this morning is flaring. 2nd toe, joint on top of my foot. GAH! I've been icing it every 20 mins for the last 2.5 hrs and not noticing much of a change. Hoping to at least stop it from flaring fully. I can't even bend my toes, and the top of my foot is swollen and red (feels like it is on fire).

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1110632326045948252005-03-12T05:55:00.000-07:002005-03-12T05:58:46.046-07:00

I'm not doing all that well this morning, moving around and walking. My feet are really hurting, as well as my knees. Could be from all the walking I did yesterday, hard to say. I'll take things easy today, since I have to study anyway. UC is still doing better, still having some cramping but it isn't bringing the results it usually does! Blood sugar dropped again yesterday while running

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1110546209321222922005-03-11T05:59:00.000-07:002005-03-11T06:03:29.323-07:00

Not feeling too awful the last couple of days. Have only had to take 1 pain pill a day instead of the 2-3 I was taking before. Still really tired and flu-ish, but that's normal, especially after a treatment. UC is doing OK, but has been a bit rumbly. Not sure if it is acting up or if it is a side effect of the Imuran. Blood sugar dropped a little yesterday but was fine after I ate something.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1110411856239830402005-03-09T16:31:00.000-07:002005-03-09T16:44:16.243-07:00

I had my Remacade treatment to day, and discussed some options with Dr B. Remacade is pretty much the only aggressive therapy for both RA and UC. So, I don't have many options, if any. We don't want to stop the Remacade, but both agreed that although I'm doing so much better than I was (night and day in comparison), we don't want me to slide back. He'll keep me on the prednisone, and Remacade

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1110368196315308542005-03-09T04:34:00.000-07:002005-03-09T04:36:36.316-07:00

It's finally here! Pretty sad when you look forward to a medical treatment, isn't it?! I will also get a chance to talk to Dr B about what he's going to do with me sliding back. I kept waking up last night, every time I moved. Irritating. Despite the pain pill I took before bed. UC has been pretty good the last couple of days, and BS has been OK.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1110118958264456892005-03-06T07:18:00.000-07:002005-03-06T07:22:38.266-07:00

I've neglected this blog for a few days! Nothing has changed really so I haven't wanted to post the same things, day after day. Things are worse today though, but through my own doing - and it is getting closer to my Remacade treatment (Wednesday). I over did things yesterday by shampooing carpets, as well as cleaning my car inside and out. It was really the shampooing carpets that did it, but

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1109677180262867882005-03-01T04:37:00.000-07:002005-03-01T04:39:40.263-07:00

I thought I was feeling a little better, but as the day wore on yesterday the achier I got. Pain pills helped though. This morning I'm so tired and sorta feel like I've been hit by a truck. I'm getting really tired of being tired. I should get some extra rest today, that is after I take a test for school. Ugh. Trying not to stress, but that's probably why I'm so tired, as well as a long day

Karennoreply@blogger.com2tag:blogger.com,1999:blog-5582460.post-1109589454874400452005-02-28T04:15:00.000-07:002005-02-28T04:17:34.876-07:00

I'm not quite as achy and sore today so the rest I got yesterday really helped, and it could be the prednisone is working too. Who knows. Hard to say from one day to the next how things will be. UC was a bit of a PITA (no pun intended) yesterday but seems to be OK so far today. Blood sugar has been OK too.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1109512103133526592005-02-27T06:42:00.000-07:002005-02-27T06:48:23.136-07:00

I just realized I didn't post yesterday, probably because everything is the same. I'm feeling a little better today, but think it is my PJ state of mind. I'm more relaxed and not stressing about getting out and doing anything today. I need some quiet time, and resting. I didn't get a lot of resting yesterday and will have a busy/long week this week.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1109336900687469912005-02-25T06:05:00.000-07:002005-02-25T06:08:20.690-07:00

Still feeling much the same, not worse though so that's something! Tummy settled down and is semi-OK again. Somewhat congested today, hope I'm not getting a cold. Could be allergies starting up, usually do this time of year. Not much else to report... haven't noticed the difference from increasing the prednisone yet.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1109245564388873752005-02-24T04:42:00.000-07:002005-02-24T04:46:04.390-07:00

Still feeling like crap, and the pain and aches are the same as yesterday. At least they haven't gotten worse - or I don't think they have. I've had to keep taking pain pills. Not taking care of all the pain, put makes it tolerable. I also was bad yesterday and had a salad. I was craving it SO much, and believe me I paid the price for it. Someone please slap me up the side of the head next

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1109158726544639502005-02-23T04:33:00.000-07:002005-02-23T04:38:46.546-07:00

I'm so not happy with what was recommended by Dr B yesterday. He wanted me to go back on Methotrexate. Hell NO. I reminded the nurse of why I was taken off of it in the first place. Suppressing bone marrow is a little bit of a problem. It was the cause of my severe anemia and all the hair I lost - despite mega doses of folic acid. No. I can't take Arava because I'm allergic to it. There

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1109072032326138932005-02-22T04:31:00.000-07:002005-02-22T04:33:52.326-07:00

I slept so good last night, and like a rock. I didn't wake up too stiff and sore, considering I don't think I moved much. I'm feeling so much better after all the rest I've gotten. My hands aren't any better - but still not worse either. Knees about the same, and my right hip is acting up a little but not bad, just when I went up the stairs this morning. UC has been fine, and so has my blood

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1108993322382944752005-02-21T06:40:00.000-07:002005-02-21T06:42:02.383-07:00

Feeling the same, and hands look the same too. Little more achy in my hips and feet but not too bad. I got a lot of rest yesterday which I needed. Everything else is OK.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1108907505361060052005-02-20T06:49:00.000-07:002005-02-20T06:51:45.363-07:00

Maybe feeling a little better, knees aren't hurting quite so bad and my knuckles and finger joints haven't gotten any worse. They're still sore to the touch, like a bruise. I'm just glad they're not getting worse! I slept really well, and the hot shower made me feel less achy. Hopefully it will be a better day.UC has been OK, and blood sugar has been pretty stable.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1108821453995001142005-02-19T06:54:00.000-07:002005-02-19T06:57:33.996-07:00

I'm feeling like crap, but not quite as bad as I did yesterday afternoon and night. I was miserable. Couldn't even bring myself to go to class. My hands and knees are about the same, at least they're not worse. I called and left a message at the doc's office yesterday. Both the nurse and Dr B are out until Tuesday, so they'll call me back then. Just to let them know what's going on, and

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1108732142267635912005-02-18T05:58:00.000-07:002005-02-18T06:09:02.266-07:00

My hands are getting worse, the swelling is on both hands now between the first two knuckles, and now the joings of my fingers are starting to discolor a bit, but they're not too swollen yet. Never a good sign. Seems like we're back sliding in the past 2 months instead of going forward. I think I'll call the nurse today, and have her talk to Dr B about doing some research about something else

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1108640256258312722005-02-17T04:35:00.000-07:002005-02-17T04:37:36.263-07:00

On both my hands now, the first two knuckles are swollen. Crap. Looks like Dr B will have to find something else to put me on, in addition to what I already take if things keep going like this. Both knees are hurting a little more than usual too. I am really tired, and haven't gotten a lot of sleep this week, but I'm hoping to get some extra sleep this weekend and a lot of rest. UC has been OK

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1108554188643663712005-02-16T04:38:00.000-07:002005-02-16T04:43:08.643-07:00

Pretty much ditto from yesterday, except my left shoulder is being a pain. I've noticed when I put my coat on, get dressed/undressed, put my seat belt on, etc., it is starting to pull a bit. My knees are popping some too. Feet are a little bit more painful today too. If they don't get better as I move around, I'll take a pain pill.The joints of my first and second knuckles are swollen too,

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1108468232271422582005-02-15T04:48:00.000-07:002005-02-15T04:50:32.273-07:00

I didn't get a lot of sleep last night, by the time I got home late from class, and did a few things. I wish I could have just climbed in bed when I got home! My legs were really achy for some reason, I had a hard time sitting still in class. It was that restless ache. I took a pain pill when I got home, and that took care of it - and all my other aches. Not doing too bad this morning, about

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1108381883674766612005-02-14T04:49:00.000-07:002005-02-14T04:51:23.676-07:00

I got about 9 hrs of sleep last night, pretty damn good for a Sunday night. I had to take a couple of pain pills though, and am still pretty achy and knees and feet are giving me grief this morning. It is raining so that probably has something to do with it. I haven't taken another pain pill yet, but will see how my morning goes. UC has been OK so far too. BS was a little low this morning,

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1108302845368894862005-02-13T06:48:00.000-07:002005-02-13T06:54:05.370-07:00

Not really too achy this morning, not much pain. Of course the hot shower helped ease a lot of them. UC is much better too today. Should be a good day!

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1108215954159548252005-02-12T06:43:00.000-07:002005-02-12T06:45:54.160-07:00

Not feeling stressed in the least today. Slept for about 9 hours, stiff and sore as usual but nothing too bad. The hot shower helped. I'm going to relax today and just do whatever I feel like! UC is kinda irritating today but not too bad either, just the normal. Not feeling quite so fluish now either, so the side effects have gone. I got a call from the doc's office and all my liver, CBC, and

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1108127226074424792005-02-11T06:04:00.000-07:002005-02-11T06:07:06.076-07:00

I've hit exhaustion... physically and mentally. I've got a million things to do today, but after that I'll have 2 ME days and will get some rest. I'm feeling pretty achy this morning, probably because I didn't move around much last night. I will get moving this morning and get my cleaning done, and hopefully feel better, if not, I'll take a pain pill. UC is kind of a pain, but hopefully it

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1108034945536048982005-02-10T04:26:00.000-07:002005-02-10T04:29:05.536-07:00

Feeling like I'm in a weird zone today. Tired but really couldn't sleep any more. Fatigue, and the usually fluish feeling I get after the Remacade, but I'm used to it. Pain isn't too bad today :-) UC is doing some better too. YAY!

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1107988198700868272005-02-09T15:26:00.000-07:002005-02-09T15:29:58.700-07:00

Nothing much to report about the Remacade treatment, he's leaving everything the same. He's going to think about adding another medication, but it will be hard to find a good one that will mix with everything else I take. I can't take methotrexate or Arava. He doesn't want to give me the max dosage (I'm close to being maxed), since he doesn't want to have me more at risk for infection, since

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1107949614174914562005-02-09T04:44:00.000-07:002005-02-09T04:46:54.173-07:00

YAY! Pretty sad when I look forward to such things, huh? I usually feel more tired and flu-ish for a couple of days but after that I get more pain relief. Over all, I think this month, things has improved a little on the day to day aches, but then again I had the shoulder flare (not the MAJOR flares like I used to get though), and a almost had one in my left hip. So I'll tell the doc about

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1107863908599385002005-02-08T04:50:00.000-07:002005-02-08T04:58:28.600-07:00

Nothing new there, being tired. I did sleep pretty good, thanks to a pain pill! I only got about 6.5 hrs though. I'm hurting again today, but not quite bad enough for a pill. My knees and feet are the worst again, and feel generally achy all over. UC is a bit of a bother but is settling down now... I hope! Blood sugar has been OK, except dropping a little because I forgot to eat my

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1107776904147717452005-02-07T04:45:00.000-07:002005-02-07T04:48:24.146-07:00

The joys of RA... what can I say? I'm hurting quite a bit this morning, not even the hot shower helped much. Time for a pain pill! I'm not hurting enough to stay home though... I'll muddle through my day and hopefully it will get better. Remacade this Wednesday. YAY. UC is doing OK, about normal - for me. BS has been good. It was a little low before dinner last night, but only 76.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1107699996471477242005-02-06T07:24:00.000-07:002005-02-06T07:26:36.470-07:00

I was right about the UC being trouble yesterday. Holy shit (no pun intended!). Things are better today though. Not too achy today either :-) YAY!

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1107609514291349572005-02-05T06:15:00.000-07:002005-02-05T06:18:34.293-07:00

Feeling pretty achy today, pretty much all over. Knees and feet are the worst. I also didn't sleep much last night, woke up in the middle of the night and couldn't go back to sleep. I'll live though. UC has been quiet... too quiet. I imagine today won't be such a good day there especially how stressed I was yesterday. BS had been level.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1107523965457859762005-02-04T06:31:00.000-07:002005-02-04T06:32:45.456-07:00

Feeling pretty blah today. Aches aren't too bad, UC is a little bit of a pain, but BS is fine. Just not feeling very perky. Tired, stressed, and just feel like something is missing.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1107441189898842012005-02-03T07:28:00.000-07:002005-02-03T07:33:09.900-07:00

I slept like a rock, and am feeling pretty good - or at least not as achy as I was last night. My left hip in the groin started to flare a bit, hurt it push my leg forward. Knees were killing me too, but they've both quieted. Feet are about the same. UC is a little on the rough side but not bad. Of course I ate some lemon chicken yesterday so maybe it is upset over that. BS has been fine.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1107344729366406532005-02-02T04:43:00.000-07:002005-02-02T04:45:29.366-07:00

Not feeling too bad today. The ball of my right foot is hurting worse than normal, feels like I'm walking on rocks. Hips are some better, as well as knees. UC is so-so, and BS is fine. Not too much to report today!

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1107260071553183732005-02-01T05:12:00.000-07:002005-02-01T05:14:31.553-07:00

Feeling a lot better! Cough is almost gone, not very stuffy and throat isn't bad at all. Fever is broken (pretty sure!), and I don't feel quiet as achy. Not even from the RA this morning. UC is a bit of a pain so far, but hopefully it will settle down. BS has been OK too.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1107167416433565962005-01-31T03:26:00.000-07:002005-01-31T03:30:16.433-07:00

Got the creeping crud. Had a really hard time sleeping last night, only got about 4 hrs and then woke up with a sore throat, slight fever, slight cough, and a little stuffy nose, so will be staying home. I hate to push myself with this because of being on the Remacade and this stuff can turn nasty really quick if I don't. It may be out of my control but I will do what I can to make sure it

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1107091943035327312005-01-30T06:30:00.000-07:002005-01-30T06:32:23.036-07:00

I'm hurting today! Moreso than yesterday, probably from all the moving of movies and cabinets, and assembling the DVD cabinet. I was exhausted last night, and I'm really paying for it today. I'll live though. I'll take things easy today. UC is doing some better, and BS has been fine.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1107004603402993502005-01-29T06:12:00.000-07:002005-01-29T06:16:43.403-07:00

VERY stiff and sore this morning, but at least my headache is gone! I've taken a pain pill to help, and the shower did help a little too. UC is a little better this morning, and BS has been pretty level as well.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1106919914156565382005-01-28T06:42:00.000-07:002005-01-28T06:45:14.156-07:00

I don't know what it is lately about Fridays and headaches lately! I think this is the 4th Friday in a row that I've woken up with a headache. This is definitely sinus tension. Even hurts to move my eyes too far to the right or left, or to blink hard. Very weird. I'm pretty achy, hips, knees, feet, fingers and my left elbow. I'll be taking pain pill! UC is still on the rampage. Crap.

Karennoreply@blogger.com1tag:blogger.com,1999:blog-5582460.post-1106826961714250402005-01-27T04:53:00.000-07:002005-01-27T04:56:01.713-07:00

Not feeling too bad today, despite the yucky weather out. Just the usual aches and pains. I'm very tired though, as I didn't get a lot of sleep. Hopefully I can take a nap later. My tummy rumbled all night again. Still that damn grape juice. Had a bad episode this morning, but it seems to have settled down again. I hope it is done now.

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1106741320114514182005-01-26T05:04:00.000-07:002005-01-26T05:08:40.113-07:00

That is what my tummy is doing this morning... I hope I'm not in for a bad day! Damn concord grape juice!! I'm sure that is what it is. I drank a glass last night for dinner. No more for me... Otherwise not feeling too bad. Achy but just the usual. Tired, but I did get more than 5 hrs sleep last night so that felt great! :-D

Karennoreply@blogger.com0tag:blogger.com,1999:blog-5582460.post-1106654260844394342005-01-25T04:54:00.000-07:002005-01-25T04:57:40.846-07:00

I'm feeling a lot better this morning. Left shoulder is done flaring (whew!) and my sore throat has gone. Good signs. My right shoulder is quite achy but that could be from me favoring the left one for the past 2 days. It isn't flaring though - at least I hope not. Normal aches and pains other than that. I'm pretty tired, but should get some rest tonight. On the UC front... note to self:

Karennoreply@blogger.com0